Read more about catastrophic reactions here.
According to psychologydictionary.org, a catastrophic reaction is a hostile, highly disorganized outburst by people living with dementia in response to a seemingly inconsequential matter. Many times, these outbursts are provoked by caregivers or loved ones simply because they are unaware of the trigger it may cause. However, we can lower the number of hostile reactions per day by explicitly stating what triggers the individual. In the "Things that Upset Me" section of Your Care Card, you, as a caregiver, can note the known origin of the disturbance to keep your loved one in a more positive mood throughout the day.
Read more about catastrophic reactions here.
National Public Radio (NPR) recently published a story about a support group in Nashville that aims to provide relief to family caregivers and those whose loved ones suffer from Alzheimer's Disease. The support group drew much of their inspiration from the Alzheimer's Foundation of America, an organization with a lofty goal of providing support to the estimated 16 million unpaid caregivers in the U.S. through education. Those in the support group gravely address the need for nighttime support in addition to respite caregivers throughout the day, but feel as if it is even more work to train a new caretaker to meet their loved one's specific needs. The organization heavily highlights the importance of sharing not only care needs but also personality and entertainment preferences with all potential caretakers.
The Care Card is your checklist. With all of the vital information in one place, it is easily shareable for any temporary hire to provide respite relief for primary caregivers.
For the full story, click here.
According to Home Care Pulse, the industry’s leading firm in quality assurance and satisfaction research, the top complaint that home care clients have is “confusion in communication due to multiple caregivers for one person.” For those that are fortunate enough to have more than one person care for their loved one, there is added stress when a new caregiver enters into the cycle because of their unfamiliarity with the patient and his/her lifestyle.
Your Care Card will help to end miscommunication issues amongst the whole care team, keeping everybody on the same page. Through instant sharing, caregivers will be updated daily about the status of their loved one or patient.
To see the top 10 complaints from home care clients, read this article from Home Care Pulse.
Earlier this year, the NIH hosted a number of experts on dementia at a research summit focused on care, services, and supports for persons with dementia and their caregivers. The summit addressed issues related to "research on care needs and supportive approaches for people with dementia, how to involve dementia sufferers as study participants, and research on models of care for persons living with dementia and their families across the disease trajectory." What came out of this summit was a report with a list of recommendations to "improve scientific priorities for research on persons with dementia and their families."
This report was meticulous and thorough as recommendations were classified into 12 overarching themes. One of the themes that is particularly relevant to the work we are doing at the Memory Kit through our Care Card is "Technology to Support Persons with Dementia and their Caregivers." Using The Care Card App, we connect a patient's bio with their daily care needs to their caregivers, family, physicians, and other specialists on the care team. With the Care Card, we bring together a patient's full network of assistance and connect them to provide the highest quality of care.
Janice Sachs was diagnosed with Alzheimer’s nine years ago. As her conditioned worsened, her family sought the help of Vantage Hospice. Her husband John informed the incoming caretaker of her specific needs, in particular that they should not try to force her to shower. Despite all of this, a second caregiver came to take over a shift and tried to force Janice into the shower. She was left with multiple bruises on her arms and hands, and she was traumatized. Her family was furious.
This could have all been avoided. The Care Card was designed specifically to combat these issues because we understand that new caregivers will constantly be coming into a loved one’s life as their care needs increase and change. Keeping everybody on the same page is crucial, and when all caregivers have access to the same information, incidents like these can be prevented.
Respite care provides temporary relief for caregivers and also acts as an interim provider of care after an injury or surgery. The Care Card Daily Notes allows these caregivers to log and update families, doctors, and loved ones about the status of recovery effortlessly and timely. When respite caregivers take over for a primary caregiver, they are provided with the guidelines and information they need to adequately care for the patient.
Once you make a Care Card, you can share it with anyone else on the care team via email.
According to the National Alliance for Caregiving and AARP (2015), caregivers who live with the person they provide care for spend an average of 40.5 hours per week providing care. This is a full time job in and of itself and requires external help especially if their loved one needs care around the clock. Using a Care Card will keep everyone on the same page in terms of transitioning between caregivers daily.
High quality care is now at your fingertips. It's so easy to make edits and to update your Care Card as your loved one's care needs change. The Care Card is the app you never knew you needed but will impact your life and that of those around you for the better. Check out this video example to see the many benefits that the Care Card can bring to your life as part of a care team.
If you have a loved one with Alzheimer's or dementia or know someone who does, The Memory Kit can help.